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My eye journey Uncategorized

My eye journey…the final part!

Long post alert! I didn’t think I would have a part three, but alas, here we are!

On the day of my last appointment, I woke up bright and early, ready for the day’s adventure. I got dressed, packed some snacks and then began my journey to Charleston, West Virginia with my husband. The trip was about an hour and a half but the straight, smooth and winding road – with no traffic made it a very pleasant trip. I enjoyed the natural scenery as well as the different buildings and images plastered all across the city once we arrived. We got there just in time for the appointment, but got lost in the building a couple of times. 

After the routine sign-in with the nurse at the reception, I sat down quietly waiting for my turn. I looked around me and realized that I was surrounded by a couple of older White people – after five years in America, I am still not used to sometimes being the only Black person in a room. Honestly, I wasn’t expecting anything different. 

After waiting for a few minutes, it got to my turn and this time, I went in with my husband. He was here to watch me go through that awful ordeal again. After a lot of running around, it was finally time to get the test done…I dreaded this moment because of my experience the first time. I explained to the nurses what my experience was the last time and they promised to do things differently this time. Their plan was to slowly insert the dye into my body, which would allow my body to adjust to it so I wouldn’t feel sick.

The first dose of dye injected into my body went well, I felt nothing and I had a little glimmer of hope and thought to myself, “this might actually work” …WRONG. I felt nauseous all over again and out came all my breakfast again…ewwwwwwwwww. That was HORRIBLE. I kept tapping my leg and just shaking. I hated every part of it. From the corner of my eye, I could see my husband looking, sitting at the edge of his seat very anxious.  But the nurses had me covered, they were so kind, sweet and very patient with me. They told me that I was one of the first people to actually throw up during this process. After I felt better the pictures were taken and then I was sent off to the consulting room, with an awful taste lingering in my mouth. 

From the images, the doctor explained that ALL the blood vessels at the back of my eye were dead – I could see it all clearly. Everything was black!  I immediately got worried. At first, I thought all this was happening in my left eye, but it turned out that my right eye was also affected.   

Simply put, because of my sickle cell condition, the red blood cells became sickle and blocked those vessels from getting blood and obviously oxygen.   So, they died…which is natural, right? As human beings if we do not have enough oxygen, we will die so that is exactly what happened. What happened next was, because of this rather unfortunate situation, they began to form their own blood vessels. This is not good, as I mentioned in my previous post, because those new vessels can break or tear away and can cause scarring which could lead to my eyes bleeding and that could cause me to go blind. If this happened, the doctor explained they would have to operate on my eye, something we both wanted to avoid.

Another interesting but worrying twist to this whole drama was how all this was related to pregnancy.   The doctor explained that the hormones that are producing those new blood vessels were the same hormones that help with the growth of a baby. Interestingly, he cautioned me not to get pregnant for the next eight to ten weeks, or at least till I had sorted out my eye issues.  This was necessary because if I begin to produce more of these hormones, it could worsen my eye problems and complicate matters. Honestly, I was not expecting this at all – it just felt like a bomb, and drummed in the point of how the sickle cell condition continues to affect my life.

My next question was, what do I do to solve the problem. He then suggested laser treatment to prevent new vessels from growing. After my appointment, I shared the information with my family. They were, and still are very supportive. In fact, my mother-in – law and my mother went on a mission to find the best care for me.

As I write, I have not had the laser treatment done yet. I am actually taking some medication I got from Ghana. Gosh, honestly, the struggle to take this medication has been real. The way I hate taking medication, you can just imagine what I have to deal with. Some of them I had to take 10 at a time, three times a day…..chai. In all of this, I knew I had to no choice.

See all this plenty medicine…

All this was done for me by my mother and my mother-in-law. I decided to do the medication route first to see what happens to my eye, then we will determine if I need the laser treatment. I am hopeful that it will all work out and my eye will be totally fine but one thing the doctor said to me and that really hit me was “Vanessa, you are not a low risk patient.” I think I forget that a lot and that was a reminder that I should not take things lightly when it comes to my health.

I am hopeful that it will all work out and my eye will be totally fine but one thing the doctor said to me and that really hit me was “Vanessa, you are not a low risk patient.”

Before I started taking the medication, I had pain, especially in my left eye, and when this happens, my husband usually gives me a cold towel to put on it. That usually works and if it didn’t I have to close my eyes for a long time…basically sleep if I have to before I get some relief. I can see well but at the same time all this action is happening at the back of the eye, progressing towards the good part of the eye…hopefully the treatment works before it gets there, but we shall see.

This is the final part of my eye appointment stories but the eye treatment is not yet over. I will continue to update you on any developments and what steps I am taking to make sure that I keep my eyesight. I am done with my first round of my medication (Thank God!!!), so I need to check my if it worked.

Please pray for me, so nothing happens to my vision. I am actually very calm about everything. God has and is always faithful. My family has been very, very, very supportive and I am just happy and grateful that I have them. Right now, I am just taking it a day at a time and I am very positive that it will all work out well Au revoir!

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21 Comments

  • Reply
    Stephen
    March 9, 2020 at 1:51 pm

    Getting you to take your medication is really a struggle.

    • Reply
      vnsmgn
      March 9, 2020 at 2:05 pm

      Oh….I am shy sef. But you know I am doing better small small…or?

      • Reply
        Stephen
        March 9, 2020 at 3:16 pm

        Well, you are doing much better.

  • Reply
    Evelyn Akagbo
    March 9, 2020 at 2:27 pm

    With Stephen there at least I am confident he will get you to take your medicine. You are in my prayers friend. You’ve got this!

    • Reply
      vnsmgn
      March 9, 2020 at 2:41 pm

      Yes, you are so right! He is my medication police officer…the man will not let me rest oo. But thank you sweetheart. I appreciate it!

  • Reply
    Thembi
    March 9, 2020 at 5:34 pm

    God will see you through. He has before and He will again. I’m glad you’ve got a hubby that’s really supportive. Stephen you do all

    • Reply
      vnsmgn
      March 9, 2020 at 5:56 pm

      Amen!! He will forever do it!! Yes, I am very grateful for him!! Thank you dear.

  • Reply
    JohnyAsh
    March 10, 2020 at 4:36 am

    God dey by your side…bibiaa b3y3 fine

    • Reply
      vnsmgn
      March 10, 2020 at 12:38 pm

      Amen! Thank you dear!

  • Reply
    Missy Nai
    March 10, 2020 at 8:00 am

    Aww sis! My God will definitely see you through. I thought it was just me taking such plenty meds . God heals… always remember!

    • Reply
      vnsmgn
      March 10, 2020 at 12:38 pm

      oh my dear…it’s not just you oo. We are all in this together! Amen oo…I believe paa! Thank you dear!

  • Reply
    Darley
    March 10, 2020 at 3:15 pm

    I’m glad u know God is faithful and He will surely see u through my dear. Just believe. Will keep u in my prayers.

    • Reply
      vnsmgn
      March 11, 2020 at 2:09 am

      Amen! Thank you dear

  • Reply
    Ethel Sowah
    March 11, 2020 at 8:30 am

    God the master physician is definitely working tirelessly on your case. I pray every vessel is restored. What to man is impossible is very possible with God. But charley the drugs eh…I have a feeling I know the source. Sometimes you take so many you feel satisfied after taking them Haha. I wish you the best hun. You will not lose your sight in Jesus name. Amen

    • Reply
      vnsmgn
      March 11, 2020 at 1:28 pm

      Amen! Thank you so much hun! I believe that it will all end well in Jesus’s name.
      Hahaha…as for the drugs eh…I am sure you know the source paaa and you are definitely right…it’s like a full meal. Hahahaha.
      Thank you so much dear. I really appreciate it.

  • Reply
    Yom
    March 16, 2020 at 7:19 pm

    Thank God for bring you this far despite not knowing how bad the situation looked. Anyways, there is nothing our Lord cannot do. You’re healed by His stripes.

    • Reply
      vnsmgn
      March 18, 2020 at 11:43 pm

      Amen! I believe, thank you Afi!

  • Reply
    Nii
    March 19, 2020 at 2:07 am

    You will get well. God be with you!

    • Reply
      vnsmgn
      March 19, 2020 at 5:03 pm

      Amen! Thank you!

  • Reply
    Maame Amma Nyame
    June 17, 2020 at 4:32 am

    It’s well
    God is with you

    • Reply
      vnsmgn
      June 22, 2020 at 1:46 pm

      Amen! Thank you.

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